Patients-Faizy-Faiha-and-Faiz-with-their-parents
Kottayam family races against time to save their children battling a tough blood disorder
MUMBAI/THIRUVALLA, Jan 17 (The CONNECT) – In a difficult battle for survival, three young siblings from Kottayam – Faizy (11), Faiha (10), and Faiz (4.5) – are urgently seeking blood stem cell donors.
Diagnosed with Beta Thalassemia Major, a genetic blood disorder, their childhood is marred with frequent blood transfusions and weakness as their family fights to give them a chance at a healthy future.
Despite their condition, the siblings continue to dream big. Faizy, a lively and determined sixth-grader, dreams of becoming a pilot and businessman.
Faiha, a bright and curious fourth grader, aspires to become an oncology doctor and help children like herself.
Little Faiz, the youngest, captivates everyone with his playful energy and ambition to become a captain pilot. Their resilience and positivity in the face of such a challenging condition inspire everyone around them.
Emphasizing the critical importance of blood stem cell transplantation in the management of thalassemia patients, Dr. Chepsy C Philip, Professor & Program Director, Regional Advanced Center for Transplantation (RACTHAM), Haemato-Lymphoid Oncology & Marrow Diseases, Believers Church Medical College Hospital stated, “India faces a substantial burden of thalassemia, with over 10,000 children diagnosed with this condition annually. Thalassemia is a genetic blood disorder that compromises the body’s capacity to produce hemoglobin. Beta-thalassemia major, a severe manifestation of the disease, necessitates regular blood transfusions and, ultimately, may necessitate a stem cell transplant for a definitive cure. Consequently, the demand for transplants among children is exceptionally high.”
DKMS BMST Foundation India, a non-profit organization dedicated to the fight against blood cancer and blood disorders, is coordinating the search for a matching donor for the young patients. To reach out to people across India, DKMS-BMST has launched a nationwide virtual drive where one can register online to help the siblings Faizy, Faiha, and Faiz find a potential lifesaver and many more patients fighting blood cancer.
“Donating blood stem cells is a voluntary act of solidarity with a seriously ill person. The availability of matching blood stem cell donors remains a significant challenge for Indian patients in need of life-saving transplants. India has a young population, so it is crucial to encourage more people to register as stem cell donors. Their continued participation in the registry significantly improves the chances of finding matching donors for patients requiring assistance,” said Patrick Paul, CEO, DKMS BMST Foundation India.
“However, finding a matching donor is a challenge; only 30% of patients diagnosed with blood cancer or a blood disorder find a matching donor within their family, while the remaining 70% of the patients rely on the generosity of voluntary, unrelated stem cell donors. Ethnicity plays a significant role in finding a matching donor,” he added.
The siblings’ father, who works far from home to support the family, urges citizens to come forward and register as blood stem cell donors to help out his kids. He says, “Watching my children suffer is unbearable. A matching stem cell donor is their only chance to survive. I urge everyone to register as donors – you could be the reason my children live to see their dreams come true.”
Dr. Chepsy C Philip, said, “Finding a stem cell donor can be a lifesaving intervention for children with Beta Thalassemia Major. A successful transplant can completely eliminate the need for lifelong blood transfusions and improve the patient’s quality of life significantly. Thalassemia is not just a physical burden but also a psychological and financial one for families, as frequent transfusions and iron chelation therapies take a significant toll. Raising awareness about early diagnosis and the potential for a cure through transplantation is critical. I urge everyone to come forward and register as stem cell donors—it is a simple act with profound impact.”
